Friday, April 12, 2013

The cyclic autoimmune disease check

Doctors have been convinced since I was 15 that I have an immunological disease, but evidence of one has never been found... until now.

I have neuropathy/paresthesia that is visible on an EMG which is not related to diabetes (because I don't have diabetes) or my back injury/surgery. If you combine that with chronic migraines, weight gain, sinus tachycardia (with no heart problems) and chronic illnesses, you get Hashimotos disease.

Are there other possibilities? Yes. Well see what the blood tests reveal on Wednesday. But every specialist (two neurologists, a cardiologist and years of physicians) have suggested two causes: thyroid + immune system. When you combine the two, you get Hashimotos.

... at least it would answer some questions.

Monday, April 1, 2013

My Spring Break

I've been trying to see a doctor for 3 weeks. On Wed, another chronic migraine started. I had one imitrex left. I took it Wed night and felt less sick on Thursday. I drove 1 hour to the nearest Planned Parenthood to get a refill on Imitrex and birth control. Imitrex is the only medicine I can take for migraines. Tylenol doesn't touch them and I'm allergic to ibuprofen, excedrine, aspirin and all related drugs.

Planned parenthood was closed. Apparently it closes at 330 except Mondays and I couldn't get an appointment or anyone on the phone. The outer door was unlocked, so I went in, praying I would get helped last minute (it was 340) and a nurse kindly told me to come back between 8-12. I told her I live an hour away, I'm having migraines, I have no where else to go and I get off work at 230. She didn't care and refused to help me get a Saturday appointment. She just repeated the walk in information and closed the locked door. So I left, furious and in tears. And as I drove south toward my spring break destination, half of it already lost to a sinus infection and a migraine, it hit me. I was intensely dizzy and agitated. I was hot and had to turn the radio off. So I turned around and headed home. I knew what was coming. The migraine was not gone. It was just hiding behind my last dose of imitrex.

I desperately called the one doctor who might be able to see me. I cried into the answering machine my predicament. And I finally got a response. I could have an appointment. Next Tuesday.