I had to take migraine meds Sunday night and last night and tonight. I am cutting all migraine aggravators (cheese, chocolate, dairy, dried fruit) except caffeine, but I am cutting back on caffeine.
I've been fighting with endometriosis and an autoimmune disease since I was 20. The struggle continues. I'm lucky to be part of a community of bloggers. We do our best to support each other and share information about treatments, advances and set-backs.
Tuesday, March 19, 2013
Saturday, March 16, 2013
Migraine
Yesterday was my first migraine without missing any days of birth control. I missed my first day of work due to a migraine in years.
Monday, March 4, 2013
Physical impact that endometriosis has had on your life
I am starting this blog in conjunction with Blogging for endometriosis.
In December of 2006, I was diagnosed with endometriosis after a laparoscopy. I turned 21 about one week after my surgery. Since then, I have been on multiple hormonal therapies, none of which worked until I went on Nuvaring in 2011. It worked for about 6 months, then it stopped working, so I was put on continuous low-dose birth control. That is no longer working, so my only option now is surgery.
Here are some of the physical effects:
In December of 2006, I was diagnosed with endometriosis after a laparoscopy. I turned 21 about one week after my surgery. Since then, I have been on multiple hormonal therapies, none of which worked until I went on Nuvaring in 2011. It worked for about 6 months, then it stopped working, so I was put on continuous low-dose birth control. That is no longer working, so my only option now is surgery.
Here are some of the physical effects:
- I have chronic migraines when not on depo-leupron or a successful hormonal therapy. Since my current therapy is no longer effective, I have one migraine a month that lasts for approximately three days. I cannot get out of bed, endure sound or light, or eat when the migraine is at its peak. If I recognize the migraine (as opposed to a stress headache or sinus headache, which I also have), and treat it early, then I can sit like a zombie and watch t.v. until the migraine passes, and manage to eat toast and drink water. But I cannot drive, go to class, or go to work. As my current therapy becomes less and less effective, the migraines will increase until they last for two to three weeks.
- I have chronic pelvic pain. I am on pain medication for another condition, which dulls the pelvic pain, but in the mornings and after meals, I have sharp severe pains. I have to sit quietly or lay down until they pass. I cannot take non-steroidal anti-inflammatories, which treat both inflammatory pelvic pain and migraines, so my treatment options are limited. As my current therapy becomes less effective, the pelvic pain will increase until it is constant.
- I have irregular bleeding. I am recently divorced and have started dating some, but I cannot predict my bleeding patterns, and that interferes with possible dates, not only for the obvious reasons, but also because of the migraines and pelvic pain associated with bleeding.
- I am lactose intolerant. I was not lactose intolerant after my surgery in 2006. I began being lactose intolerant again in 2009 when my endometriosis symptoms began to be more severe. I have other dietary limitations due to the inflammation, including tolerating small amounts of soy or meat proteins. As the inflammation increases, I will be able to eat less and less.
- I am infertile. I have been infertile for two years because of tumors on my ovaries. As I'm sure you can imagine, this also interferes with my ability to date. When I have my next surgery, I may have a short period of fertility during which I can have children. I am considering harvesting and freezing my eggs, but I can't afford it. I also couldn't afford hiring a surrogate, so I will probably never have my own children. I am 27.
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